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9 Days, 9 Ways Day 8: Practice

You are ready. Tomorrow, they hear from the experts. By now you understand the gap, you know your legislators, you have your why, and you know the ask. That is everything you need. Today is about getting call-ready by having the script at hand and the phone numbers for your Read more

By Chris Melfi, 22 hoursSeptember 8, 2026 ago
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Days, 9 Ways Day 7: Close the Gap

Know exactly what you are asking for, and what it would change. When you meet with your legislators, you are not asking for a favor. You are asking for specific things the law already promises. It helps to know what they are, and what they would mean in your actual Read more

By Chris Melfi, 2 daysSeptember 7, 2026 ago
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Days, 9 Ways Day 6: Grow

One voice is a start. Many voices bring change. Here is how this actually works: One constituent reaching out matters, but many constituents from the same state, saying the same thing, matters far more. Legislators pay attention to the people they represent, so the most useful thing you can do Read more

By Chris Melfi, 3 daysSeptember 6, 2026 ago
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9 Days, 9 Ways Day 5: Visibility

FASD is often called a non-apparent disability, and too often it is treated as an invisible issue. The needs are real, but many decision makers will never hear about them unless we bring awareness to them. Awareness is its own form of advocacy. Every time someone learns what FASD is, Read more

By Chris Melfi, 4 daysSeptember 5, 2026 ago
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9 Days, 9 Ways Day 4: Share Your Why

Your story is what makes you the expert. Here is something worth remembering while advocating: when it comes to FASD, you are the expert, and your legislators are not. They will not learn what this community needs from a briefing or a lobbyist. They learn it from constituents who can Read more

By Chris Melfi, 5 daysSeptember 4, 2026 ago
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9 Days, 9 Ways Day 3: Research

Find the people who can make change happen Today is Day 3, and we will be researching who your two Senators and one Representative are. You already do so much for the FASD community, either as a self-advocate, a loved one, or a professional. But there is one piece of Read more

By Chris Melfi, 6 daysSeptember 3, 2026 ago
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9 Days, 9 Ways Day 2: Connect

You are not meant to do this alone Today is Day 2, and it is all about Connection. Take a look below for more. You are not meant to do this alone. Advocacy works best as a community, not a solo effort. There are others out there who understand what Read more

By Chris Melfi, 7 daysSeptember 2, 2026 ago
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9 Days, 9 Ways Day 1: Understand

A law without funding isn’t change. Before you can ask anyone to fix a problem, you have to be able to name it. So we start by understanding what exists for the FASD community, and what does not. Here is what exists. In a real victory by and for this Read more

By Chris Melfi, 1 weekSeptember 1, 2026 ago
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Introducing Fund FASD

Use this new 1-pager to ask your legislators to Fund FASD Fetal Alcohol Spectrum Disorders (FASD) affect as many as 1 in 20 Americans, more than most other comparable disabilities, yet FASD receives only a fraction of the federal investment. FASD programs have been underfunded for years, and until the Read more

By Chris Melfi, 3 weeksAugust 17, 2026 ago
FASD Respect Act Federal Policy News State Policy News Uncategorized Virtual Policy Forum

In Case You Missed It-July 2026 Policy Forum

If you were not able to attend June’s Monthly Policy Forum, you can check out the recording and slides below. Reach out to [email protected] with any questions or if you need support in your state! The theme of July’s Policy Forum was Fund FASD. We spent the hour discussing the Read more

By Chris Melfi, 4 weeksAugust 10, 2026 ago

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